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#
toughliketori
“Small acts.
Life-changing impact.”
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Facts & Figures
Understanding the Urgency
1/1m
People Worldwide
PeComa affects roughly 1 in 1 million—making it one of the rarest cancers and one of the most underfunded.
100-300
U.S. Cases Annually
With so few diagnoses each year, research funding and awareness remain extremely limited.
<1%
<1% of Kidney Cancers are PeComa
Malignant cases in children are among the rarest of all pediatric cancers.
About Us
Tough Like Tori Foundation (TLT) is a nonprofit organization, honoring Tori DiLeo.
She passed away in August 2025, at the age of 18 from TFE3 PeComa, a rare and aggressive kidney cancer.
Tori was a National Honor Society Student, an avid tennis player, graduated Cum Laude and was loved by all who knew her. She continued her junior and senior years of high school via distance learning, while undergoing various treatments and surgeries. All while continuing to make honor roll each quarter. She never gave up and never backed down from her disease, or anyone!
Upcoming Events
Join Us. Make an Impact.
Tough Like Tori Memorial Outing
July 20, 2026
9:30am
Harrison Meadows Country Club
Golf • Tennis •
Adult Dinner • Auction
Join us for a day of sport and community supporting pediatric cancer research.
Registration coming soon...
Hear It From Our Founders
"We don't just honor Tori's memory — we carry her spirit forward into every lab, every family, every moment of hope we help create."
— TOUGH LIKE TORI FOUNDATION
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